Support Group

I hosted a support group last night for the second time. It went very well. I was supposed to have two people come, out of the 30 that joined the group, but only one of them showed up.

The other lady said she was going to go and then cancelled last minute. At least she let me know that she was cancelling before hand.

However, what was weird about it was after she had cancelled, she rewrote back and asked how many people were going. I said myself and one other.

I’m not sure what to make of that. Would she have gone if there were more people? Was she wondering if there were going to be only a few people and then it would be more manageable? I’m not sure. I’m kind of curious though what difference it made.

The woman I did meet was really great. She has Fibromyalgia and works in the health industry. It was really nice to hear another person’s opinion about how they deal with stuff. She was very active, or so it seemed, so I am happy for her. She ran fairly late, even though I stated in my group bio that when there are meetup’s people need to be on time. Since it was only us, she pushed it back from 6:00 to 6:30, but then didn’t show up until 6:50. Had she not let me know, I would have had to have left after only a few minutes of meeting her. Oh, how I long for the days when we didn’t have cell phones and people had to be where they said they would be when they said they would be there. I wouldn’t care as much if I wasn’t sick, but I am. Our society today just lives for themselves, not realizing that that is how they come across when they are late like that. It is somehow okay that someone is technically 50 minutes late for an appointment just because they have the ability to tell you that they will be late. I really wanted this support group to abide by the rules that people are in pain, myself included, and only have a limited amount of time to socialize. I can’t wait all night for someone to show up, and I’m sure others are the same way.

You know why I also want people to show up on time? Because I really liked this lady and then when the designated time was done, I didn’t want to leave. I was then having a debate with myself on whether or not I could tough it out. Unfortunately, as we all know by now, I am always worse the next day than I am at the current time of an event. However, it wouldn’t have been as big of a deal if she had been on time. I had to leave at 7:30, because of my back, so really, I only got about 40 minutes to talk with her.

Plus, my two friends showed up because they didn’t want me sitting alone, which was sweet, so I really didn’t even talk to the lady that much.

Oh, well — enough of my rantfest. I liked her, so we actually made plans for a few weeks from now. I’m looking forward to it.

However, I am a little bit sad today. I know it was a big deal that I reached out, and am trying improve my social circle here in a new city, with a lot of physical restrictions, but I’m sad. I’m sad because no matter how fun last night was, how proud my friends were of me, I’m still in pain. I still hurt all the time. I hurt today from yesterday’s 1.5 hour excursion. Is it worth it? I’m not really sure anymore. I’m just so exhausted from hurting all the time. I’m tired of hurting all the time. It’s annoying, and anger-inducing, and sometimes I just want to scream. I can’t even scream because it would hurt me too much. It just feels like no matter what I accomplish: making it to doctors appointments, starting support groups, walking a bit — I’m never actually accomplishing the feat of not being in pain. It’s always there and it’s a fucking nightmare.

I just feel lost.

Radom Ramblings for the day – friends equal more pain

Today is an interesting day. I had friends come over this week on Tuesday and Wednesday. I felt like I was doing okay when they were here. However, last night was kind of difficult. Lots more pain. There was a bit of burning at the site, but more so, there was a real tenderness around the muscle site.

It just sucks because I want to be able to do more stuff, I just hate suffering for it because of it. What I really need to do is find a place that is flat, so that I can walk whenever I want and get out whenever I want. It would be so much better for me.

I’m think of maybe trying Auburn, California. It looks beautiful there, it is near a Sutter hospital, and it’s a lot cheaper.

I think that might be in my best interest.

The only sad thing will I won’t have any friends around there. It’ll be lonely out there.