Pain Management Doctor Appointment

Well, not the greatest doctor visit ever.

I saw a pain management specialist yesterday to see if there was anything that they could do to help alleviate the pain and to maybe think of some things we could try to help the muscle and annular tear heal.

She wasn’t very helpful on either front.

Dr. T.P. was very thorough in her health history and seemed to be taking very good notes the whole time. She asked what things I had tried and seemed very impressed(?)/astonished(?) that I had tried so many avenues. What did she think? That I would just be laying around for a year and half twiddling my thumbs? Of course I would be proactive!

Yet, she didn’t have really much to offer on pain relief. She gave me a cream to try out, but I was hoping for something, I guess, more substantial. She had no suggestions on things that I could do to improve the annulus, or to improve the muscle. She said no way on IDET, no on disc replacement, and no on further epidural steroid injections. The reason behind no more epidural steroid injections was that she said it does wonders for people who have sciatica, not for the type of diffuse, generalized pain I am having from my annular tear. She had no comment on fusion and complete disc removal. What she did suggest was trying the PRP. She really wants me to try and tough it our for a few years until stem cells are available. She thinks that’s the wave of the future.

So really, leaving her office, what it boils down to is that I will have this back pain for years to come, with no relief in sight, and with the hope that stem cells will cure/fix me.

That caused some tears last night. No kids. No adopting. No job. No sitting. No life.


Random Ramblings: Forteo (PTH replacement)

Alright, so here we go. I’ve decided to go with the drug. It’s called Forteo. After talking with a bunch of friends and running it past my Endocrinologist (the doctor who would actually be prescribing the drug), I have been convinced to try it.

One person’s advice was really good. They said that since I don’t have any PTH, my chances would probably be slimmer of getting Osteosarcoma because I’m not enhancing an already there hormone. I just don’t have any. That logic made sense to me and made me feel better.

However, the drug is administered via daily injection.

Now, I don’t mind needles. I don’t mind people drawing my blood. I could get my blood drawn every day and I wouldn’t mind. I’d prefer not to, don’t get me wrong, but it would be no big deal.

It’s another thing to have to stab yourself.

Not sure I’m liking this concept.

My appointment is next week Thursday. I’m not sure if I get the drug that day, or if it’s just for tests and such.

I’ll keep you informed.

Random Ramblings: PTH injection

I don’t know what to do. My primary care doc wants to start me on a non-FDA approved drug. It has a black box warning that states it may cause Osteosarcoma. That is bone cancer. However, he does think that by giving me this drug, it might help me heal.

I’m not sure what to do. I want my back to heal. It’s been over a year and a half. I’m just not progressing. Maybe this is the answer?

But if it’s not, then I have the chance of having bone caner. Bone cancer is also immensely hard to treat. That would not be something that you can easily just cut out.

I already had cancer once, I don’t know if this increases my chances or not. My gut says this isn’t the way to go, but I’m out of options.

What should I do?

Random Ramblings: Ugh, in pain from driving in the car

Ugh. Another setback. I tried getting into my car in order to go to the doctors, but there was a small problem. My husband had driven someone to an event, and he had put the seat back a bit. Not a lot. Yet, just enough so that I arched my back subconsciously looking/feeling for the back of the seat.

Now the annular tear is on fire. I can’t sleep very well at night. My stretches are severely restricted. I had to cancel an appointment for tomorrow because I really don’t feel like I can tolerate sitting in the car for any amount of time.

I’m tired of all of these little setbacks. I’m tired of never being able to turn the corner. I’m tired of trying to keep my hopes up all time.

But, what can you do? I can’t give up. If I give up, then there definitely isn’t any hope.

So, I hope that things change soon. I really do hope.